Yesterday I was back at the 'Marsden for the first time in five weeks. It felt familiar and strange all at the same time.
I’d gone in for two appointments, the first of which was to see my Counsellor. Clearly a lot has happened since I first saw her in August, so it was good to be able to chat openly, and positively, about how things had progressed.
In particular, I was able to talk about how - with a few exceptions - my life is pretty much back to normal. I've healed from the operation and my boob is looking good. My hair has grown back and I've finally been able to get jobs done at home and visit friends and relatives that I've not been able to see during treatment.
Indeed my short, wavy hair is proving quite a talking point. Even complete strangers, with no knowledge of my cancer, are complimenting me on my barnet. It's flattering, if unexpected.
However, being the awkward, embarrassed sort when someone says nice things to me I must learn to resist dropping the 'C' bomb as some sort of mitigation for my hair style. I give you 'The Case of the Friendly Neighbour' ...
There is a gentleman who lives on my road and with whom I have been chatting and exchanging pleasantries for the last four or five years. I don't see him that often, and do specifically try NOT to talk to him when he's running in his Lycra onesie, but he is a lovely guy.
However, the embarrassing fact is that I can't remember his name. Worse still, he always remembers mine and too much time has elapsed for me to ask for a 'reminder'. Anyway, it transpires that we can't have spoken for quite a while as the following embarrassing exchange recently took place:
Neighbour: "Kate! Hi! I've not seen you in ages ... Love the hair!
Me: "Thanks ... I've had chemotherapy."
Neighbour: [stunned silence] Oh. God. I'm so sorry ... "
Me: "Oh. No. Honestly, I'm fine ... and at least I've got some hair now."
Neighbour: [long awkward pause] “Yes*.”
*The man is completely bald.
When I’m not shoving my foot in my mouth though, life is going very well and the reconstruction process is now well underway.
After my counselling and a spot of lunch in the ‘Marsden cafe, where I was pleased to find it was music free – (last time I went they had ‘Never say goodbye’ by Bon Jovi on continuous repeat, which I did think was a bit much in a cancer hospital) – I had an appointment to see my surgical consultant and breast care nurse.
And it was all good news. The mastectomy has healed well and the swelling has gone down, which meant that I was ready to be ‘pumped up’ a bit more to stretch the pectoral muscle to make room for what will be a silicone implant in the new year.
I have to say though, apart from surface skin sensation, I have little to no feeling in my new boob so when she jabbed a needle into the tissue expander and started to inflate it with water it did seem a little surreal.
Part of that strangeness is also the fact that they have to put a magnet to my chest to locate the valve. Not any old magnet, I should add – fridge magnets don’t work (we’ve tried) – but the metal in the implant does mean that I can’t have an MRI while I have it inserted, and that my boob needs its' own ID card to get through airport security.
Anyway, post inflation, I’m now looking lop-sided. I’m also feeling sore again, like I did straight after the operation, as the pectoral muscle is being constantly pulled. On the plus side though, it does appear that I will – in the wider scheme of things - automatically get bigger boobs than the ones I started with as they want to to ‘perk up’ lefty to match the shape of my new righty, so I will get implants in both sides. Ree-sult!
It’s up to me how much bigger I go, (probably not that much), but I do have one more injection scheduled for mid November. After that, I’ve opted to have some fat injected over the tissue-expander to try and make it look a bit more natural before I get the proper implants.
That will require an operation, in early January, but a relative minor one I think. Basically, they put a couple of nicks in the back of my thigh – siphon out a bit of fat – and pop it in my chest. How good is that? A boob job and lipo-suction, all in one!
When I’ll actually get my final matching pair though, I’m not quite sure. It would be nice to have them in time for Mr P’s birthday at the end of March ... I think he deserves them. Failing that, mine at the end of June. That really would be one hell of a 40th birthday present.
Friday, 19 October 2012
Tuesday, 9 October 2012
Calling all the heroes!
As mentioned in my last post, October is Breast Cancer Awareness Month - which not only serves to highlight all the important facts that people should know about breast cancer, but also to celebrate the fantastic achievements of those either fighting or supporting someone in their fight against the disease.
The Breast Cancer Campaign are therefore urging people to recognise their 'Superhero'; someone who has inspired you and/or changed your life for the better.
So, of course, I've nominated my lovely Mr P. He's been such a fantastic support to me over the last year - I really don't know what I would have done without him.
But there are lots of equally wonderful people and heart-warming stories, so I would urge you to take a look and maybe nominate someone that you know/love too.
I've said before, that it's the indiscriminate nature of cancer that makes us all equal but - through experiencing and sharing that adversity - I really do believe that it can often be a catalyst to bring out the very best in people. No experience is ever wasted.
And, talking of good people doing good things! The lovely people at Stella & Dot are donating all the net proceeds from sales made in October to Breakthrough Breast Cancer. They have some really beautiful items and it's not too early to be thinking about Christmas presents!
However, if handbags/jewellery aren't your thing but having a drink/dance is (and you can get over to west London) ... then Mr P. and I, with assistance from our good friend Russell, will be hosting a little fundraiser on Saturday 27th October. Full details are on the events page and via Facebook.
The Breast Cancer Campaign are therefore urging people to recognise their 'Superhero'; someone who has inspired you and/or changed your life for the better.
So, of course, I've nominated my lovely Mr P. He's been such a fantastic support to me over the last year - I really don't know what I would have done without him.
But there are lots of equally wonderful people and heart-warming stories, so I would urge you to take a look and maybe nominate someone that you know/love too.
I've said before, that it's the indiscriminate nature of cancer that makes us all equal but - through experiencing and sharing that adversity - I really do believe that it can often be a catalyst to bring out the very best in people. No experience is ever wasted.
And, talking of good people doing good things! The lovely people at Stella & Dot are donating all the net proceeds from sales made in October to Breakthrough Breast Cancer. They have some really beautiful items and it's not too early to be thinking about Christmas presents!
The more the merrier! |
It would be great to see some of you there but, if you can't make it and would still like to make a donation, you can do so via our Just Giving page.
Monday, 1 October 2012
Do your bit!
October is ‘Breast Cancer Awareness Month’. So cop a feel of yourselves, or someone close to you (do ask permission first!) and help more people to understand, and treat, what is now the UK’s most commonly diagnosed cancer.
One in eight women will develop breast cancer at some point in their lifetime, with over 48,000 women (UK) diagnosed with breast cancer each year. (And it’s not just the girls - around 350 men are diagnosed annually too.)
But, while sadly over 1,000 women still die each month, the good news is that more patients than ever are surviving thanks to better awareness, screening and treatments.
The main thing is to catch it early and that means checking regularly. It’s not always easy and sometimes you’re not sure what is suspicious and what isn’t – for example, my tumour was very high on my breast bone – so, when in doubt, get yourself to the doctor.
Breakthrough have some great guidance on their website and are encouraging all women, regardless of age, to give themselves a little ‘TLC’ ...
- TOUCH your breasts. Can you feel anything unusual?
- LOOK for changes. Is there any change in shape or texture?
- CHECK anything unusual with your doctor.
Of course, there are other brilliant charities and web resources out there: Breast Cancer Care, Macmillan and Cancer Research, to name but a few.
Suffice to say, all these services need money and, this month, lots of well-known brands are lending their support with many products - everything from hair-straighteners to zumba-wear - offering limited edition 'pink ribbon' versions and making a donation from sales.
The other way to raise money is to hold an event. All through October people are being encouraged to 'think pink', with Friday 26th October designated as 'Wear it Pink' day.
Mr P. and I shall be doing our bit too. Knowing what a bunch of fancy-dress-loving exhibitionists our friends are, we plan to hold a pink-themed Wear it PUNK Halloween party to raise some funds and 'scare the shit' out of cancer.
Mr P's very excited and already working on his DJ set. It's going to be one 'hell' of a night!
Suffice to say, all these services need money and, this month, lots of well-known brands are lending their support with many products - everything from hair-straighteners to zumba-wear - offering limited edition 'pink ribbon' versions and making a donation from sales.
The other way to raise money is to hold an event. All through October people are being encouraged to 'think pink', with Friday 26th October designated as 'Wear it Pink' day.
Mr P. and I shall be doing our bit too. Knowing what a bunch of fancy-dress-loving exhibitionists our friends are, we plan to hold a pink-themed Wear it PUNK Halloween party to raise some funds and 'scare the shit' out of cancer.
Mr P's very excited and already working on his DJ set. It's going to be one 'hell' of a night!
Sunday, 16 September 2012
Boobie's Big Night Out
Me and my new tit went out to party last night and, my God, we did it in style!
It was the 50th anniversary of our theatre group, the Beaufort Players. I know I talk about the BPs a lot on this blog but they have been such a support to both me and Mr P during the course of my treatment.
Of course, we have many other friends and supporters too - love to you all! - but not least my twin sister, Clare, and Mr P's parents who also came along to celebrate the 'BP Jubilee'.
My sister was even roped into playing me in a comedy sketch, reminiscing about the history of the group and remembering so many of the colourful characters that have made it what it is.
Habeas Corpus by Alan Bennett (April 2008) |
It was such good fun to get out last night because for the last few days, and probably more than during any part of my treatment, I have been feeling very tearful.
I know why, of course. It's the emotional release in knowing that I don't have to keep on 'keeping on' anymore. It's been a long time coming after trudging relentlessly for nine months along a gruelling and uncertain path.
I had been warned that it's after the treatment ends that the enormity of everything you've been through starts to hit home. That's very definitely true. I'm still recovering from my operation (and I know I still have further reconstructive procedures) but I do feel that I can finally 'let go'.
I feel I can finally relax and say: "God, that was shit. Thank f*ck that's over!"
But, of course, I wouldn't.
What kind of 'potty-mouth' do you think I am? ;-)
Thursday, 13 September 2012
So long, sucker!
Yes, indeedy – it seems that cancer has finally f*cked off! If I didn’t still have stitches, I would attempt a little cartwheel.
Mr P. and I went and got the results of my mastectomy this afternoon. In short, while there were further cancerous cells present in the breast tissue removed, they weren’t yet the invasive sort that could have spread to my lymph nodes. (Meaning all the dangerous invasive cells had been removed during my earlier lumpectomy)
Consequently, I don’t need to have radiotherapy. Woohoo!
In essence then, my treatment for cancer has ended. Of course, I do still need to complete the reconstruction process and decide if/when I start taking Tamoxifen (the drug to keep my hormone levels down), but the intensive slog of hospital appointments does seem to be slowing right down. I do have a couple of counselling sessions booked, and an ultra-sound scan, but I don’t need to see another consultant for a month.
Which means I can now just concentrate on resting, healing and getting my strength back post surgery. To say that Mr P. and I are relieved, would be an understatement.
Mr P. and I went and got the results of my mastectomy this afternoon. In short, while there were further cancerous cells present in the breast tissue removed, they weren’t yet the invasive sort that could have spread to my lymph nodes. (Meaning all the dangerous invasive cells had been removed during my earlier lumpectomy)
Consequently, I don’t need to have radiotherapy. Woohoo!
In essence then, my treatment for cancer has ended. Of course, I do still need to complete the reconstruction process and decide if/when I start taking Tamoxifen (the drug to keep my hormone levels down), but the intensive slog of hospital appointments does seem to be slowing right down. I do have a couple of counselling sessions booked, and an ultra-sound scan, but I don’t need to see another consultant for a month.
Which means I can now just concentrate on resting, healing and getting my strength back post surgery. To say that Mr P. and I are relieved, would be an understatement.
Tuesday, 11 September 2012
"Hanging on the telephone ..."
Just when I thought that I might not have much more to do with hospitals, people have started phoning my home thinking that it is one!
It first happened a few weeks ago, when a very croaky man phoned up. I started chatting, thinking that was it was Mr P:
Me: “Hello”
Caller: (croaky) “Urgh ...”
Me: (laughing) “Oh, hello”
Caller: “Urgh ... hello”
Me: (still laughing) “What’s the matter with you?”
Caller: (indignant) “I’ve got a sore throat ... *cough, cough* [long pause] ... Is that the hospital?”
Me: “Er. No.”
But it’s happened again and I arrived home last night after my extended stay at Mr P’s to a number of answer phone messages. You’d think that hearing a casual “Hi, this is Kate ...” might alert them to the fact that I’m not Barnet Hospital, but apparently not.
Anyway, after two more calls today, I’ve looked into it and my home phone number is only one digit different from the hospital’s day surgery. Fair enough, easy mistake to make. But ... the reason why this has rattled me so much is that I have had EXACTLY the same problem with my mobile phone number!
That has only one digit different to the out-of-hours number for a Homecare facility in south London. As you can imagine, Christmas and Bank Holidays are a particular joy: old ladies asking when someone is coming round with their milk; old guys asking me to change their dressings ... I do seem to have extraordinarily bad luck!
But, yes, it is also quite funny. (Although, not sure I thought that as I nearly bust a stitch to get to the phone this morning!) I have now got those hospital and care numbers on standby, should distressed callers contact me again for medical assistance.
And as for me, I’m doing OK. I’m still popping the painkillers but am up and about and trying to get back to normal. My torso muscles are, obviously, very bruised and strained and that limits my arm strength and movement, but every day it is improving.
I’ll be back at the hospital on Thursday to see my surgeon but judging from the immediate reactions last week post-surgery, they did seem pretty happy with the way it had gone. The main thing now is to find out if I’ll need radiotherapy and that depends on the histology report - that is, the analysis of the breast tissue that they removed.
Whatever the outcome, I still have lots to feel positive about. My boob is looking good and, while I have yet to see it ‘sans nipple’, the shape under my clothes – after what is just the first stage of reconstruction - has come as a pleasant surprise.
I’ve also got my sister coming to stay. She’s coming down for the weekend and, together with many wonderful friends, we will be celebrating the 50th anniversary of the theatre group to which Mr P and I belong - The Beaufort Players.
They really are a fantastic bunch and Mr P and I are so enormously grateful for all the love and support that we’ve received over the last eight months. It really is like having a big extended family.
And as with all good family gatherings, I’m looking forward to a nice piece of cake, a few drinks and a bit of embarrassing dancing. They’re even letting me DJ and play some 80s tunes. I’ve already picked my first (Blondie) song ...
“Call me!” ;-)
It first happened a few weeks ago, when a very croaky man phoned up. I started chatting, thinking that was it was Mr P:
Me: “Hello”
Caller: (croaky) “Urgh ...”
Me: (laughing) “Oh, hello”
Caller: “Urgh ... hello”
Me: (still laughing) “What’s the matter with you?”
Caller: (indignant) “I’ve got a sore throat ... *cough, cough* [long pause] ... Is that the hospital?”
Me: “Er. No.”
But it’s happened again and I arrived home last night after my extended stay at Mr P’s to a number of answer phone messages. You’d think that hearing a casual “Hi, this is Kate ...” might alert them to the fact that I’m not Barnet Hospital, but apparently not.
Anyway, after two more calls today, I’ve looked into it and my home phone number is only one digit different from the hospital’s day surgery. Fair enough, easy mistake to make. But ... the reason why this has rattled me so much is that I have had EXACTLY the same problem with my mobile phone number!
That has only one digit different to the out-of-hours number for a Homecare facility in south London. As you can imagine, Christmas and Bank Holidays are a particular joy: old ladies asking when someone is coming round with their milk; old guys asking me to change their dressings ... I do seem to have extraordinarily bad luck!
But, yes, it is also quite funny. (Although, not sure I thought that as I nearly bust a stitch to get to the phone this morning!) I have now got those hospital and care numbers on standby, should distressed callers contact me again for medical assistance.
And as for me, I’m doing OK. I’m still popping the painkillers but am up and about and trying to get back to normal. My torso muscles are, obviously, very bruised and strained and that limits my arm strength and movement, but every day it is improving.
I’ll be back at the hospital on Thursday to see my surgeon but judging from the immediate reactions last week post-surgery, they did seem pretty happy with the way it had gone. The main thing now is to find out if I’ll need radiotherapy and that depends on the histology report - that is, the analysis of the breast tissue that they removed.
Whatever the outcome, I still have lots to feel positive about. My boob is looking good and, while I have yet to see it ‘sans nipple’, the shape under my clothes – after what is just the first stage of reconstruction - has come as a pleasant surprise.
I’ve also got my sister coming to stay. She’s coming down for the weekend and, together with many wonderful friends, we will be celebrating the 50th anniversary of the theatre group to which Mr P and I belong - The Beaufort Players.
They really are a fantastic bunch and Mr P and I are so enormously grateful for all the love and support that we’ve received over the last eight months. It really is like having a big extended family.
And as with all good family gatherings, I’m looking forward to a nice piece of cake, a few drinks and a bit of embarrassing dancing. They’re even letting me DJ and play some 80s tunes. I’ve already picked my first (Blondie) song ...
“Call me!” ;-)
Friday, 7 September 2012
The great escape
Mr P. went out this morning and left me home alone. So I made a break for it ...
I hadn't intended to go out but my surgical drain was ready to be removed and when I phoned my GPs they said the only time the nurse could see me was 9.30am. So I hoofed it up there in a cab, with the plastic tubing and beaker tucked in a tote bag under my t-shirt.
In theory, the drain removal should be straightforward - if uncomfortable. However, after several sturdy yanks on the pipe it became clear that the nurse was not going to be able to get it out of my chest. She wasn't sure if it was kinked or caught, but it wasn't budging.
My options were to get another cab home or a cab to the 'Marsden. So I went to the hospital, where I sat nervously waiting in the clinical assessment unit petrified that I was facing another painful procedure.
Anyway, thankfully I wasn't. It did hurt a little bit but apparently the vacuum seal had not been fully released and that was why it wouldn't come out. So after a cup of tea and a biscuit, to steady my frayed nerves, I set off back home ... on public transport.
Yes, I know that was a bit naughty. But it was so nice to be out and about in the sunshine. I'm still very sore but am so much more mobile without a metre of plastic pipe sticking out of my ribs. It's nice to feel like myself again.
I've also managed to get a bra on and, even allowing for swelling and the need for further inflation, there is already a pretty good balance between the sides with my clothes on.
So all in all, I've got every reason to feel chipper - and Mr P. and I will be receiving visitors from this evening. I'm looking forward to seeing everyone. :-)
I hadn't intended to go out but my surgical drain was ready to be removed and when I phoned my GPs they said the only time the nurse could see me was 9.30am. So I hoofed it up there in a cab, with the plastic tubing and beaker tucked in a tote bag under my t-shirt.
In theory, the drain removal should be straightforward - if uncomfortable. However, after several sturdy yanks on the pipe it became clear that the nurse was not going to be able to get it out of my chest. She wasn't sure if it was kinked or caught, but it wasn't budging.
My options were to get another cab home or a cab to the 'Marsden. So I went to the hospital, where I sat nervously waiting in the clinical assessment unit petrified that I was facing another painful procedure.
Anyway, thankfully I wasn't. It did hurt a little bit but apparently the vacuum seal had not been fully released and that was why it wouldn't come out. So after a cup of tea and a biscuit, to steady my frayed nerves, I set off back home ... on public transport.
Yes, I know that was a bit naughty. But it was so nice to be out and about in the sunshine. I'm still very sore but am so much more mobile without a metre of plastic pipe sticking out of my ribs. It's nice to feel like myself again.
I've also managed to get a bra on and, even allowing for swelling and the need for further inflation, there is already a pretty good balance between the sides with my clothes on.
So all in all, I've got every reason to feel chipper - and Mr P. and I will be receiving visitors from this evening. I'm looking forward to seeing everyone. :-)
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